JOHNS HOPKINS Hemangioblastoma Radiosurgery Appointment
In The USA
1991 - 2001"
Johns Hopkins Hemangioblastoma Treatments
National Cancer Institute
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American Brain Tumor Association
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Hemangioblastoma News What is Neurosurgery?
For hemangioblastomas, Von Hippel Lindau disease,
Lindau's disease, cystic hemangioblastomas, recurrent hemangioblastomas,
hemangioblastomas radiosurgery and cerebellar hemangioblastomas please visit
Email Dr. Jeffery Williams (email@example.com). The decisions
related to treatment for the hemangioblastomas inclucing cerebellar
hemangioblastomas and cystic hemangioblastomas depend upon the complete
understanding of the competing risks vs. benefits for the different treatments.
Options for hemangioblastoma treatment may include surgery or radiosurgery. The
FSR (fractionated stereotactic radiosurgery) for
hemangioblastomas is an important option for treatment. The important
considerations include the size and rate of growth of the hemangioblastoma as
well as the progression of any symptoms.
Curriculum Vitae: Dr. Jeffery Williams
Director, Brain Tumor Radiosurgery
The Johns Hopkins Hospital
Board Certified: Neurological Surgery
Board Certified: Radiation Oncology
Email firstname.lastname@example.org Dr. Jeffery
Email Address: email@example.com
The Hemangioblastoma Mailing List
Treatments: Hemangioblastomas are seen most often in the cerebellum but may
also occur in the retina, brain stem, cerebral meninges and spinal cord. The
minority of hemangioblastomas are associated with von Hippel-Lindau disease in
which multiple lesions are usually seen.
- Less than 10
percent of hemangioblastomas are associated with polycythemia. The
hemangioblastomas usually occur in adults. The hemangioblastomas in the
cerebellum and spinal cord are often associated with a cyst whose wall is
formed of glial cells.
- The decisions
related to treatment of hemangioblastomas depend upon the complete
understanding of the risks and benefits of the competing methods for
Hemangioblastomas cause specific clinical syndromes.
Hemangioblastomas are a diverse group of
brain tumors. Hemangioblastomas arise from the normal "glial" cells of the
brain. These cells outnumber the "neurons" that conduct impulses and serve to
provide metabolic support to the neurons. The Hemangioblastomas have specific
signs and symptoms that are primarily related to the location of the
- The cerebellar Hemangioblastomas, for example may cause difficulty with
gait (ataxia), co-ordination or nystagmus (oscillation of the eyes on lateral
gaze toward the side of the tumor). Larger tumors may cause hydrocephalus. On
occasion the polycythemia caused by the hemangioblastoma may result in deep
venous thrombosis or other vascular abnormality.
- The temporal lobe Hemangioblastomas, for example may cause epilepsy,
difficulty with speech or loss of memory.
- The frontal lobe Hemangioblastomas may cause behavioral changes, weakness
of the arms or legs or difficulty with speech.
- The occipital Hemangioblastomas may cause loss of vision.
- The parietal Hemangioblastomas may cause loss of spatial orientation,
diminished sensation on the opposite side of the body, or inability to
recognize once familiar objects or persons.
Microsurgical resection of Hemangioblastomas can be performed.
of Hemangioblastomas can be done via several approaches.
- The craniotomy involves opening the skull, opening the covering of the
brain (the dura) and exposing the tumor.
- Once the tumor is exposed it is carefully resected.
Stereotactic Radiosurgery offers non-invasive treatment of certain newly
diagnosed or recurrent Hemangioblastomas.
Radiosurgery allows specific irradiation of the tumor. Narrow beams of
radiation specifically target only the tumor. The normal brain is spared and
does not receive significant exposure.
- Stereotactic radiosurgery may be particularly suitable for
- For recurrent Hemangioblastomas after conventional surgery and radiation,
stereotactic radiosurgery is an option for treatment.
- The most important aspect of the Hemangioblastoma suitable for radiosurgery
is the size. Smaller tumors are treated more effectively by the
The patient information may be submitted.
Radiosurgery offers specific, local treatment to the Hemangioblastoma with
sparing of surrounding normal tissues. The forms below allow the important
information to be sent. This information can help in the discussion of the most
appropriate treatment. The treatment decisions for the Hemangioblastomas are
complex. Much depends upon the age and "performance status" of the patient.
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