The form below may be of interest to patients who have Hemangioblastomas. It outlines many of the important questions related to this clinical entity. If desired, the form can be sent to Dr. Williams using the "Send Form" button at the end of the page. Dr. Williams can, if desired, subsequently correspond regarding the issues related to the treatment options.

The tumors most amenable to radiosurgical treatment are:

• Small in size (usually less than 3 centimeters in diameter).
  
  
• Deep location rendering resection difficult or hazardous.
  
  
• Well demarcated on MRI.
  

• Many patients undergo a series of treatments for the Hemangioblastomas including multiple surgical resections, conventional external beam radiotherapy and possibly systemic chemotherapy.
  
  
• Radiosurgery is a consideration even in the context of intense prior treatments. This is because the radiosurgery limits dose to the tumor, sparing normal brain. Further, the fractionation of the treatment further spares normal brain.

Email Dr. Williams regarding Hemangioblastoma treatment options: Dr. Williams

Your email address (if response is desired):

Please enter the responses and click on the "Submit Form" button at the end of this form.

• Date of Diagnosis

  What is the DATE of the diagnosis of the first Hemangioblastoma (If a Hemangioblastoma was diagnosed in the past before the current Hemangioblastoma )?

  
  
  
  
  

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• Method of Diagnosis of Hemangioblastoma

  How was the first Hemangioblastoma diagnosed?

  Stereotactic Biopsy

  Craniotomy

  Only radiographically

  
  

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• Location of Hemangioblastoma

  What was the location of the Hemangioblastoma ? (Please ask your doctor for clarification of the location.)

  Supratentorial (Above tentorium)

  Posterior Fossa (Cerebellar)

  Other

  
  

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• Number of Tumors

  How many Hemangioblastomas were there initially prior to any treatment, right after the first diagnosis?

  One (solitary)

  Two

  Three

  Four

  Five

  More than Five

  
  

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• First treatment(s) prior to current treatment (if applicable)

  How was the first Hemangioblastoma treated?

  Stereotactic Biopsy only

  Craniotomy only

  Stereotactic Biopsy and Radiation

  Craniotomy and Radiation

  Craniotomy or biopsy, radiation and chemotherapy

  
  

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• Date of initial treatment after first diagnosis (if applicable)

  What was the DATE of the treatment for the FIRST Hemangioblastoma ?

  
  

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• What is the DATE of the DIAGNOSIS of the CURRENT Hemangioblastoma (or Hemangioblastomas if more than one)? (This (these) Hemangioblastoma (s) are for consideration for the CURRENT radiosurgery or surgical resection).

  
  

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• Number of Tumors now

  How many Hemangioblastomas are there now?
  One (solitary)

  Two
  
  Three
  
  Four
  
  Five
  
  More than Five
  
  
  

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• Size of tumor now

  What is the largest dimension (in centimeters) of the Hemangioblastoma (or largest Hemangioblastoma if more than one)? One

  Two Centimeters
  
  Three Centimeters
  
  Four Centimeters
  
  Five Centimeters
  
  More than Five Centimeters
  
  
  

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• Current Treatment other than Radiosurgery

  Prior to Radiosurgery (if applicable), how is the CURRENT Hemangioblastoma (or group of Hemangioblastoma s) treated?

  Stereotactic Biopsy only

  Craniotomy and removal of as much tumor as possible

  Craniotomy and external beam irradiation (regular radiation)

  Craniotomy and external beam irradiation (regular radiation)and chemotherapy.

  Other (not listed above):

  
  
  

This completes the Hemangioblastoma Registration Page.

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